Patient education: Parkinson disease treatment options — education, support, and therapy (Beyond the Basics)
- Daniel Tarsy, MD
Daniel Tarsy, MD
- Professor of Neurology
- Harvard Medical School
PARKINSON DISEASE OVERVIEW
Parkinson disease (PD) is a chronic movement disorder that is best managed with a combination of close monitoring, medication, education, support and therapy, exercise, and nutrition. Surgery can be beneficial for some people with Parkinson disease.
This topic will review education, support, exercise and physical therapy, and nutrition for Parkinson disease. The symptoms, diagnosis, and medical treatment of Parkinson disease are discussed separately. (See "Patient education: Parkinson disease symptoms and diagnosis (Beyond the Basics)" and "Patient education: Parkinson disease treatment options — medications (Beyond the Basics)".)
PARKINSON DISEASE EDUCATION
Being diagnosed with a chronic disease can be a frightening experience, filled with uncertainty about what the future holds. This is especially true if the person knows a friend or family member who has experienced the disabling effects of Parkinson disease.
In the first months and years after being diagnosed with Parkinson disease, it is important to gather information about initial symptoms and the treatment options that are available.
PARKINSON DISEASE SUPPORT
A person may respond to the diagnosis of Parkinson disease with anger, fear, depression, anxiety, resentment, or a combination of these emotions. Concerns about social and financial well-being are common. Support groups can help the patient and family to interact with other individuals who have the same diagnosis to allow these people to share experiences and information. Support groups also provide opportunities to hear speakers talk about various aspects of Parkinson disease. Several national groups are listed below. (See 'Where to get more information' below.)
People with young-onset Parkinson disease may benefit from a group composed of similar-aged patients. A handbook (Parkinson’s Disease Handbook) and other informative publications geared for patients and families are available through the American Parkinson Disease Association.
Other types of support are available for people with Parkinson disease and their families, including psychologic, financial, legal, or occupational counseling. A physician, nurse, or social worker can usually provide contact information for these services in the local area.
EXERCISE AND PHYSICAL THERAPY
It is not clear if exercise can slow the progression of Parkinson disease. However, it can help patients to feel better, both physically and mentally. Aerobic exercise may have a positive effect on disease status while improving quality of life and socialization. Favorable studies have appeared in the medical literature on exercises to improve balance, flexibility, and strength (including dance and tai chi). However, these reports will need to be confirmed. Exercise can help to prevent some of the complications of Parkinson disease caused by rigidity and flexed (or bent) posture, such as shoulder, hip, and back pain. The benefits of exercise will persist as long as exercise continues. Many patients who participate in an exercise program feel more confident and gain a sense of control over their disease.
Simple strengthening and stretching exercises are important for everyone with Parkinson disease. Aerobic exercises, such as walking (outdoors or on a treadmill, with support), riding a stationary bicycle, swimming, or water aerobics are easy to perform and usually energizing. A physical therapist can help you develop an exercise program that suits your needs.
PARKINSON DISEASE SAFETY ISSUES
Falls prevention — As Parkinson disease gets worse, the risk of falling increases. To reduce this risk, patients and caretakers are encouraged to make the home as safe as possible by:
●Installing shower or tub grab-bars.
●Having adequate lighting in the house, especially at night. Use of light sensitive night lights or lamps on a timer may be helpful.
●Securing loose rugs, which can increase the risk of tripping.
The Centers for Disease Control and Prevention (CDC) has fall prevention materials available online (www.cdc.gov/homeandrecreationalsafety/falls/index.html).
Driving safety — Most people with Parkinson disease can continue to drive as long as their motor symptoms remain mild. Driving ability must be monitored and formally reevaluated if and when motor and cognitive symptoms worsen. The Association for Driver Rehabilitation Specialists can provide names of local occupational therapists or driving specialists who can perform driving tests to see if Parkinson disease is affecting driving.
If it is necessary to stop or cut back on driving, other forms of transportation are available, such as taxi cabs, shuttle buses, public buses, or trains. Walking, if practical, is always a healthy way to get around. The ElderCare Locator (www.eldercare.gov) is a resource that can provide assistance in locating help with transportation as well as housing, financial or legal services, health insurance, and long-term care.
PARKINSON DISEASE SPEECH THERAPY
Problems with speech, including slurred speech and speaking too quietly, are common in people with Parkinson disease. These problems develop as muscles weaken in the voice box, throat, mouth, tongue, and lips.
A voice or speech therapist can help overcome speech problems. This may involve training to speak more loudly and clearly, conserving energy when speaking (speaking only important words/phrases), and using nonverbal methods such as a letter or word board, hand signals.
A speech therapist can also evaluate and treat problems with swallowing. The medical term for difficulty with swallowing is dysphagia. Dysphagia can increase the risk of coughing, choking, or inhaling food (aspiration), which can lead to pneumonia. Treatments for dysphagia may include sitting up straight while eating, tilting the head slightly forward, eating small bites and chewing completely, and not speaking while eating. Another treatment is the use of a powder to thicken liquids or thin food, making them easier to swallow.
PARKINSON DISEASE NUTRITION
There is no specific diet recommended for people with Parkinson disease. However, some patients notice that protein in a meal can block the effect of a dose of levodopa taken around meal time. People who notice this effect should speak to their healthcare provider.
It is important to be sure that the person is getting an adequate number of calories and nutrients to maintain strength, bone structure, and muscle mass. Problems with unintended weight loss, poor appetite, eating and swallowing, or preparing food should be discussed with a healthcare provider. The provider may recommend meeting with a registered dietitian.
Constipation is a frequent problem for people with Parkinson disease because of disease-related changes in the bowels or as a side effect of Parkinson disease medications. Constipation can sometimes be managed with changes in diet or use of a laxative or stool softener. A full discussion of treatments for constipation is available separately. (See "Patient education: Constipation in adults (Beyond the Basics)".)
WHERE TO GET MORE INFORMATION
Your healthcare provider is the best source of information for questions and concerns related to your medical problem.
The following organizations also provide reliable health information:
This article will be updated as needed on our web site (www.uptodate.com/patients). Related topics for patients, as well as selected articles written for healthcare professionals, are also available. Some of the most relevant are listed below.
Patient level information — UpToDate offers two types of patient education materials.
The Basics — The Basics patient education pieces answer the four or five key questions a patient might have about a given condition. These articles are best for patients who want a general overview and who prefer short, easy-to-read materials.
Beyond the Basics — Beyond the Basics patient education pieces are longer, more sophisticated, and more detailed. These articles are best for patients who want in-depth information and are comfortable with some medical jargon.
Patient education: Parkinson disease symptoms and diagnosis (Beyond the Basics)
Patient education: Parkinson disease treatment options — medications (Beyond the Basics)
Patient education: Constipation in adults (Beyond the Basics)
Professional level information — Professional level articles are designed to keep doctors and other health professionals up-to-date on the latest medical findings. These articles are thorough, long, and complex, and they contain multiple references to the research on which they are based. Professional level articles are best for people who are comfortable with a lot of medical terminology and who want to read the same materials their doctors are reading.
Bradykinetic movement disorders in children
Clinical manifestations of Parkinson disease
Cognitive impairment and dementia in Parkinson disease
Diagnosis and differential diagnosis of Parkinson disease
Etiology and pathogenesis of Parkinson disease
Management of nonmotor symptoms in Parkinson disease
Motor fluctuations and dyskinesia in Parkinson disease
Nonpharmacologic management of Parkinson disease
Potential disease-modifying therapies for Parkinson disease
Overview of tremor
Palliative approach to Parkinson disease and parkinsonian disorders
Pharmacologic treatment of Parkinson disease
All topics are updated as new information becomes available. Our peer review process typically takes one to six weeks depending on the issue.